The idea was born with Sarunas Narbutas, a cancer survivor and the president of the Lithuanian cancer society, and Shajjad and Katie Rizvi, founders of Little People, an award winning Romanian cancer charity. Together they created the Youth Cancer Europe foundation that incorporates youth cancer networks across Europe. The stark realisation that while Europe is awash with cancer organisations and patient forums, yet there is nothing that is specifically youth driven, youth inspired and youth oriented, an organisation that is the bridge between childhood can adult cancer patients, across tumour types and speaks the language of teenagers and young adults. Youth Cancer Europe or YCE meet, talk, plan, share, lobby, engage, fight, stand up for the rights of youth cancer patients across Europe, highlighting great examples of good practice from local networks to inspire, create and strengthen youth cancer networks in countries that have little or no voice. In 2018 Youth Cancer Europe work at with the European parliament helped change Belgium law regarding “the right to be forgotten”, improving the situation for countless people effected by cancer in Belgium.